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2024 Program

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Simply the Best (Practices)

October 24, 2024
Capital Ballroom
More than ever before, patient advocacy organizations are being formed to drive therapeutic development for specific, and often very small populations. How can this work be optimized to avoid ‘reinventing the wheel’? What lessons can be gleaned from existing coalitions in the non-rare disease space, and how can organizations leverage the collective power of fellow patient advocacy organizations to benefit all communities?
Moderator
Michele Oshman, SVP of Patient Advocacy - Biotechnology Innovation Organization (BIO)
Speakers
Eric Gascho, Senior Vice President, Policy and Government Affairs - National Health Council
Hugh Hempel, Executive Director - N1 Collaborative
Sunitha Malepati, Founder & CEO, Buffalo Initiative and Vice President - CACNA1A Foundation, Inc.
Heidi Ross, Vice President, Policy and Regulatory Affairs - National Organization for Rare Disorders (NORD)

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